Moms like you are so special. Blogging is not only a great way to help raise awareness, but also to connect. You will find other families like yours.
If you want to gain readers, try to post regularly, which it looks like you are doing. Don't give up, even when you feel like no one is visiting except for friends and family. I got a surprise comment from a stranger who's daughter just had surgery at the same hospital that my son goes to and had the same procedure as his last surgery. He has a heart defect. He didn't really know how he found me but he did, and I think it made him feel better to connect. That was the point in which I realized that I was actually helping others.
Find the big organizations that deal with spina bifida, and at them to your blog in a resource section on your sidebar. Add lots of tags to your posts and use them a lot so search engines pick up on them and if another family is looking for SB then they will have a better chance of finding you.
I would suggest a bit more contrast in the colors. It looks like you are going for black, white and gray, but the text doesn't pop out of the page enough and on some monitors will be very hard to read. Fill in your profile more, you don't really have to answer every last question, but it visitors will connect with you more if you let them know who you are. You can go to addthis.com and get the little share button and it will tell you how to insert it to the end of every post, so you can share the direct link on twitter, facebook etc. Look on social networking site like twitter for SB organizations and follow them. I have found a lot of other heart families on twitter by following different orgs.
And A was right, look for forums and talk with other moms there. Lots of orgs have forums as part of their website.
Good luck, you have a great idea!
