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Blogging and Special Needs

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Started by Helen and Cindy, author of The Suite Life of Lucy and Ethel
At the Suite, normal is just a setting on a dryer

8/19/2009 8:18 AM

We met each other because we each had babies diagnosed with spinal muscular atrophy, or SMA. One of the main purposes for our blog is to spread awareness of this so-called rare disease (the leading genetic cause of death for children under two!) and to share our experiences of life - and death - with SMA. We also share others' special stories and follow several closely.

Did you start blogging because of some sort of 'special' life assignment? If not, have you become hooked on any fellow bloggers' special circumstances?

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Reply by Debi
author of Who Says 8 is Enough? (main family blog)
Who Says 8 Is Enough?

8/19/2009 7:30 PM

I started blogging to basically keep in touch with family and have been amazed at how many people enjoy reading about our family.

I remember the first nonfamily member comment and remember who it was and was shocked when it happened. (I had no clue about blogging. LOL)

I have met so many wonderful mamas to twins, adoptive mamas, foster parents, families to many, mamas to autistic kids, mamas to handicapped children, etc...just through sharing interests and it's so wonderful to compare notes and offer comfort.


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Reply by Katie
author of Crafts by Katie

8/19/2009 9:29 PM

I actually started blogging while I was pregnant with my oldest son. A couple of friends of mine launched one of, if not the, first blogging site at www.deardiary.net and asked me if I'd write there. Ten years later and I'm still blogging. My 9 year old has cerebral palsy and once we get settled in here, I may start writing more about life with that.

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Reply by Helen and Cindy
author of The Suite Life of Lucy and Ethel
At the Suite, normal is just a setting on a dryer

8/19/2009 10:35 PM

Debi, we were ecstatic over our first follower and first comment! 

Actually, we're still pretty ecstatic over new followers and comments!



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Reply by Debi
author of Who Says 8 is Enough? (main family blog)
Who Says 8 Is Enough?

8/19/2009 10:40 PM

Me too! I'm amazed every time a new face arrives, and even more amazed when they return :)

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Reply by 5MinutesForMom
author of 5 Minutes for Mom - Bringing Moms Together
Twin Sisters Help Promote your blog

8/20/2009 2:38 AM

Janice and I actually started blogging to help promote work at home moms and their online businesses. As wahms with online stores we knew first hand how hard it is to get traffic and exposure and we sincerely want to help others. 5 Minutes for Mom has grown to be a lot of different things, but that is still our primary goal.

Our 5 Minutes for Special Needs is my favorite of our sister sites. I believe it is such an important community!!!

~Susan

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Reply by Mama Plays Mozart
author of Mama Plays Mozart

8/20/2009 9:31 PM

Blogging is like therapy for me. I have a beautiful daughter with complex medical needs and I need to stay strong so I can be there when she needs me the most.


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Reply by Debi
author of Who Says 8 is Enough? (main family blog)
Who Says 8 Is Enough?

8/21/2009 1:01 AM

Susan,

I have to agree. I know I have even written to you about it, but I just LOVE 5MFSN. I have met the most wonderful women who have been helping me a lot as I struggled to deal with my son's diagnosis while my friend's baby was dying.

Thank you so much for creating it!


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Reply by Suzie
author of Lily's Life is Great!

8/21/2009 1:22 AM

I started blogging because my daughter, who has Down syndrome, had a small part in a movie. I was updating my family and friends. It turned into a whole different world when I found out that a lot of my friends who have children with Down syndrome were also blogging.

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Reply by Beverly
author of Ramblings and Ruminations of a VHL Mom

8/21/2009 6:01 PM

I started blogging because I kept an online journal with updates about my son (diagnosed at age 16 with brain tumors and a genetic cancer syndrome).  The journal, however, was for "sick" kids...and I often found myself writing outside of the boundries of drs and hospitals. 

So I started blogging instead.


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Reply by Stephanie
author of One "Hip" Momma

9/8/2009 12:49 PM

I have blogged through many of our special life assignments (I love that!!).

I started blogging through CaringBridge when our daughter had open heart surgery 6 years ago to help keep family & friends updated with her progress & healing. I then found it helped me as well & continued to privately journal once we were home & well.

Our littlest was diagnosed with Developmental Hip Dysplasia last year. I have started a blog to not only keep our family & friends updated but to help others recognize DDH in the hopes that other families will not have to endure the many surgeries & challenges that a late diagnosis has. If I can help just one family ... that would be incredible.

Warmly,
Steph
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