When my youngest daughter was born, I thought this was going to be a piece of cake. I had two children already and I was older and wiser, right? Well life had a few curveballs in store for us and we spent much of Aislynn’s first months in the hospital dealing with some pretty serious health stuff. Things calmed down for her health wise and we got to take her home for good in August of 2006 but she was still battling a number of chronic issues, some of which we didn’t even know about at that point. One of which being Common Variable Immunodeficiency which when the body cannot produce enough antibodies to fight off infections. She spent most of her toddler years on antibiotics before we had a diagnosis and the never ending infections kept her pretty sick and worn out though she had the biggest smile on her face always! Severe eczema and blepharitis in her eyes meant we couldn’t spend a lot of time outdoors anyway because she couldn’t tolerate the extreme heat or cold (and we’re in New England where there’s not a lot of middle ground) and she is extremely light sensitive. So for a momma and two older kids who love the beach, this has been hard in the summer months.
Now that she’s received a diagnosis and has been undergoing antibody replacement therapy via an IV every three weeks, her health has greatly improved as has her skin. Fatigue is still an issue and we don’t know what the future holds but right now we are so very happy that she’s off antibiotics and her IG numbers have all improved. One thing I love to do with my family is travel and Aislynn loves staying at a hotel. It doesn’t even have to be a nice hotel, just something about having a room with a t.v. and eating somewhere new and “exciting” thrills her. Since the kids are off for school vacation, my sister and I planned a trip for her two boys and Aislynn to Cape Cod. We reserved rooms at a local hotel where there are kids’ activities during vacation week and an indoor pool, thinking that would entertain the kids for a few days. However, New England weather being what it is this week turned out to be one of the most beautiful weeks we’ve had for April Vacation in a long time. Sunny and warm, we decided we would head to the beach with the kids and let them explore and play in the sand. It’s not quite warm enough for ocean swimming here yet but they got to dip their toes in. What a great surprise to be able to play at the Cape beaches in April! Just the fact that Aislynn is able to enjoy the beach with us is a big improvement in our lives. She played in the sand for hours and was having “the best day ever” for two days in a row. And I was happy to be at the beach and so thankful that my little girl could enjoy it with her cousins. Seeing Aislynn able to just be a kid on the beach like every other kid, was a sweet moment for this momma.
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